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Newsletter October 2020

Join our Mission to End ME/CFS:

Your Digital Fundraising Toolkit is Here!

Passionate about our mission to end ME/CFS? Join us in our fight to fast-track critical research into Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) by starting your own digital fundraiser!

Open Medicine Foundation (OMF) is excited to announce that we have created your all inclusive toolkit for digital fundraising so you can help us to support groundbreaking research projects any time of the year, from anywhere in the world. All you need is an internet connection. 

View the toolkit now

The toolkit includes simple, easy-to-use guides for launching fundraisers on Facebook or CrowdChange, and downloadable templates to help spread the word on social media or email. 

Why digitally fundraise for OMF?

Millions of dollars are needed annually to support The End ME/CFS Project. 

OMF has set an aggressive goal to raise $20+ million per year from grants and donations. By digitally fundraising, you directly aid in keeping the research moving with urgency so that we may find diagnostic tools, treatments, and a cure for the millions affected by ME/CFS. 

Thank you for your support! 

Announcing the U.S. ME/CFS Clinician Coalition Website!

Formed in 2018, the U.S. ME/CFS Clinician Coalition is a group of American ME/CFS expert clinicians with the shared goal of improving clinical care for people with ME/CFS, and providing medical education on ME/CFS for healthcare providers.

View the new US ME/CFS Clinician Coalition website now

 The goal of this website is to help medical providers deliver better care to people with ME/CFS. It includes resources that may assist with diagnosis of ME/CFS and insight into clinical management, opportunities for continued medical education courses on ME/CFS, guidance on disability or school/work accommodations, and more. 

We do hope this website can serve as a valuable resource that people with ME/CFS can also share with their medical providers.

Make sure to also visit OMF’s updated Resource Center on our website, which provides links to the US ME/CFS Clinician Coalition Diagnostic Guidelines, as well as other useful information for your doctor.

IACFS/ME 2020 Virtual Scientific Conference Report Published

 The ME Association put together an excellent conference report covering The International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis’ (IACFS/ME) 2020 virtual scientific conference. 

Read the full conference summary.

The IACFS/ME conference was held on August 21 2020, with over 200 people in attendance, including researchers, clinicians, patients and caregivers. OMF was proud to be one of the sponsors of this event.

This conference focused on biomedical, public health, and behavioral aspects of ME/CFS and associated co-morbidities. A portion of the meeting was dedicated to COVID-19 and its relevance to and implication on ME/CFS research and clinical care.

OMF’s Chief Medical Officer, Dr. Ronald Tompkins, also gave a presentation on the Conversion of COVID-19 Patients to ME/CFS. (You can read a brief summary of Dr. Tompkins’ presentation in the IACFS/ME Conference Report on page two.)

Many thanks to The International Association for Chronic Fatigue Syndrome/ Myalgic Encephalomyelitis (IACFS/ME) for hosting this important conference, and to The ME Association for making a comprehensive conference summary available to the community.

OMF Awarded Score of 100 on Charity Navigator!

OMF is proud to share that we have received a score of “100 Encompass Rating” in the Finance & Accountability category on Charity Navigator! Less than one percent of the thousands of charities rated by Charity Navigator have earned perfect scores and we are one of them!

This is an essential first step in the rigorous process to achieve a 100 point perfect score. Less than one percent of the thousands of charities rated by Charity Navigator have earned perfect scores.

Charity Navigator (CN) is one of the United States’ largest and most-utilized evaluators of charities that helps donors to give to charitable organizations with confidence. CN evaluated OMF’s financial health including measures of stability, efficiency and sustainability. CN also tracked accountability and transparency policies to ensure OMF’s good governance and integrity.

Charity Navigator’s rating system examines important areas of a charity’s performance: their Financial Health and their Accountability & Transparency; Finance & Accountability; Impact & Results; Leadership & Adaptability; Culture & Community.

OMF’s score of 100 serves as an indicator of trust, demonstrating our longstanding commitment to ensuring accountability, transparency, and measures of financial health, including stability, efficiency and sustainability.

You can view OMF’s Charity Navigator page here.

If you are able, please consider contributing to our effort to uncover research-based answers.

Help us improve the quality of life for all sufferers of ME/CFS and other chronic complex diseases, such as Post Treatment Lyme Disease Syndrome and Fibromyalgia. 

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

What are the advantages of giving from your Donor Advised Fund (DAF)?

  • Your gifts to your donor advised fund entitle you to an immediate income tax deduction at the time of contribution.
  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
  • Your fund’s investment gains accumulate tax free.
  • Funds are distributed to Open Medicine Foundation in your name and immediately put to use to support our worldwide research efforts.

How do I make a donation through my DAF?

Just click on the DAF widget below. It is simple and convenient to find your fund among the over 900 funds in our system.

Still can’t find your fund? 

  • Request a grant distribution through your Donor Advised Fund sponsor
  • Be sure to use OMF’s EIN #26-4712664
  • You can also designate OMF as a beneficiary for your Donor Advised Fund
  • Questions? Give us a call at 650-242-8669