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ME/CFS is – Approved Assets to Use

Ali is holding a sign that reads: “ME/CFS is living in pain and fear. Bargaining, frozen in the outskirts of time and reality.”
Niko is holding a sign that reads: ME/CFS is the absence of life.
Siobhan is holding a sign that reads: “ME/CFS is not having the strength to hold a piece of paper.
Laura is holding a sign that reads: ME/CFS is not being able to rely on medical professionals and having to read thousands of medical journals and doing medical research on yourself in order to help yourself.
Mare is holding a sign that reads: ME/CFS is loosing everything that makes you ‘you’ while being (systematically) neglected, gaslighted and traumatized.
Liv is holding a sign that reads: ME/CFS is living in a constant state of grief. Every time you start to adjust to your new reality - to your latest loss - something else is taken away.
Hayden is holding a sign that reads: “ME/CFS feels like being trapped in a glass box watching life go on without you. It’s longing to belong somewhere and be a part of the world but being stuck at home with no end in sight.
Shan is holding a sign that reads: ME/CFS is being forced to ensure debilitating symptoms 24/7 that would send most people to the hospital..with no treatments or cure.
Eirik is holding a sign that reads: ME/CFS is a sentence you never earned, in a prison you can’t escape, for a length no one can tell you.
Bridie is holding a sign that reads: ME/CFS is losing 90% of my functional capacity.
Sign that reads: ME/CFS is having shoes & clothes you can’t wear, friends you can’t see, a body you can’t use, a life you can’t live. lovenrageillustrations: Nafas is holding a sign that reads: ME/CFS is an invisible
Samantha is holding a sign that reads: ME/CFS is watching life happen to other people while you slowly fade away.
Rosalyn is holding a sign that reads: ME/CFS is a living hell.
Em is holding a sign that reads: Myalgic Encephalomyelitis is forgetting what it was like to just sit, breathe, move, eat, speak, and EXIST without struggling.
Fran is holding a sign that reads: ME/CFS is being punished for existing.
Sign from Angela that reads: “ME/CFS is the world missing our on millions of brilliant and beautiful people.
Lysh is holding a sign that reads: “ME.CFS is: No job or career, No movement or exercise, No calling or seeing friends, No energy for basic care, No independence, No life.
Katie is holding a sign that reads: “ME is 24/7 unrelenting symptoms that get worse from doing literally anything.”
Olenka is holding a sign that reads: Having ME/CFS is experiencing the most agonizing and unyielding yearning-the kind you read about in poems and literature-simply to rejoin a world that’s moving on without you while simultaneously grieving for who you were and all the versions of youself you could have been of you just had never gotten sick.
Fran is holding a sign that reads: ME/CFS is being punished for existing.
Samantha is holding a sign that reads: ME/CFS is watching life happen to other people while you slowly fade away.
Mare is holding a sign that reads: ME/CFS is loosing everything that makes you ‘you’ while being (systematically) neglected, gaslighted and traumatized.
Em is holding a sign that reads: Myalgic Encephalomyelitis is forgetting what it was like to just sit, breathe, move, eat, speak, and EXIST without struggling.

Millions of Lives
Put on Hold

  • Careers ended. Education interrupted. Independence lost.
  • Many are housebound or bedbound for years.
  • Isolation replaces community and daily connection.
  • People struggle to be believed and understood.
  • There are no FDA approved treatments.
  • Hundreds of millions worldwide face multisystem diseases like ME/CFS and Long COVID.

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Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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