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Family of Netherlands Patient Raises Money and Awareness for ME / CFS

Team OMF hero, Kelly Handjes of the Netherlands, gathered a group of family, neighbors and friends to support OMF. This special event was organized in honor of Bente Kubin, who is suffering from severe ME / CFS. Surrounded by family and friends, the event was emotional, fun, heartwarming and meaningful. Bente’s mom and sister explained what ME / CFS is and what it’s like to have a daughter and sister with this devastating disease. A nice singer performed and a fun auction was held. All together they raised over 5000 euros. Bente couldn’t be there, but she has seen a lot of photos and some videos, and she is grateful beyond words.

Kelly was successful in gaining local press so that the message of hope was shared. Kelly and Bente shared with OMF that they hope they have helped the OMF team a little further to find a solution as soon as possible! The whole group shared that they can’t wait for the magical moment Bente has her life back so Bente, family and friends can be together again, and she finally can follow her dreams!

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia Leading Research. Delivering Hope.Open Medicine Foundation®

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  • You avoid capital gains tax on appreciated assets you place in your donor advised fund.
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